Showing posts with label special needs. Show all posts
Showing posts with label special needs. Show all posts

Monday, March 18, 2013

China trip - Post 12 - About Mia Ting

We have known each other one week now and I thought I would write a bit about our new daughter - her personality, how it's going so far, and a bit about her history and special need. When I return home and have access to my referral photos and other photos we received during our year long adoption process, I will write a post to tell the story of how God found this little girl for our family and how we came to adopt her.

So far, I think we are doing quite well. She has bonded with me from the start - tho that's not to say that she hasn't acted difficult for me at times in a testing sort of way. She is a bit afraid of John still which is something you can all pray about. We know that, typically, adopted kids will often choose one parent to bond to at first on the adoption trip and that this happens often. With our other daughters, they bonded one to each of us so we didn't quite experience this in the same way - we each had one and that was actually easier at first. Within a few weeks they were ok with both of us.

John has taken it all in stride and knows she will adore him soon enough (and if she's like the others, she will). But I know it is hard on him and it's sad for me. So some prayers on this would be great - that she warm up soon. She is great with the big kids and gets very silly and giggly with them. She loves to look at our photos of the family and run through imitating everyone's names (including Jemila and Kulate) - tho she still shakes her head when we get to "Baba" (Daddy).

She is bright and curious, strong and smiley. She is stocky and sturdy with a beautiful face and contagious laugh. She is learning how to count and say "thank you" "please," and "more" in sign and English. She uses the word "potty" now. She sweats a lot (?) and is very active (jumping every step and wanting to jump up on anything she can). She is at once mature acting, chattering away with tons of expressions in Chinese (she speaks a dialect of Mandarin), and then suddenly like a toddler, whining and communicating in a babyish sing-songy baby whine. She is a bit headstrong and I hate to say it...bratty at times. She gives lots of eye contact (a great thing) but uses her little pout often.

She is funny and likes to tease, ornery at times and a bit of a princess (I think she must have been quite babied in her foster home). She likes hugs and is beginning to like kisses (we were told the children here are snuggled but not kissed), and she loves to share whispers, and hold hands.

She likes music and cartoons, and eating (everything!) and hot tea. She cradles her baby doll and stuffed bunny, jumps on the bed, and doesn't appear to be afraid of much at all. She is learning to listen to books and wearing dresses and skirts seems new to her but she is getting used to them. She refuses any hair bows or headbands (whips it right out of her hair) and LOVES her new pink sneakers. (Update - she has kept a little hair bow on for the last hour with the bribe of a lollipop! This mom likes headbands and hair bows so we will be working on this!)

Being an older child already classifies Mia Ting as a special needs child. Her additional special need was listed as mild Cerebral Palsy when we first reviewed her files. She was described as developmentally and physically ok but with mild speech delays. Upon further study of her medical info by John and I (we are both medical field people) and two international adoption medical specialists, it was obvious that her need was not CP but hydrocephalus.

Hydrocephalus is an accumulation of cerebral spinal fluid in the ventricles of the brain. It is caused by trauma, infection or congenital blockage. If caught before the skull plates fix (around 15 months of age) a shunt can be surgically placed in the ventricle to shunt away the fluid to the abdomen thus allowing the skull to fuse correctly. Mia's head measurements were large when she was found at one week of age...and she never had the opportunity for surgery.

An early CAT scan showed hydrocephalus as do her head circumference measurements over the years. A CAT scan done later showed the hydrocephalus resolved on its own but not before leaving her with a poorly shaped and larger than normal head circumference. In many cases if left untreated hydrocephalus causes brain damage and when we accepted her referral we were very aware that this could be the case. To us, she seems remarkably intact physically and mentally...just delayed due to environment and being babied. Praise God! Tho' there are still many unknowns and probably an MRI in our future to determine that she does not have any remaining fluid or abnormalities.

Her photos do not show it, but when you meet her you will notice her larger forehead, abnormally shaped head (this will probably only be noticeable at the pool - her hair hides it!), and the two prominent "bumps" on either side of her forehead. These bumps (imagine an "egg" that rises after a child bumps their head) are a common finding in kids with hydrocephalus. Unfortunately because they stick out, they have gotten the brunt of any falls and are quite scarred.

We have read only positive information from other families who have adopted children with this medical condition and pray Mia's situation will also be one that will (other than cosmetically) not hinder her development and life.

And now for a whole bunch of just adorable photos of our new daughter...





































Monday, December 3, 2012

It makes a difference to this one...



One of my first friends at our homeschool co-op, was Julia. We met when my son poked her son in the eye (can't recall if it was an accident or on purpose!). We were on a field trip with them and kept bumping into each other on future field trips. We joked that we obviously needed to get out of the house as we took advantage of any and every field trip...

Years have passed and Julia and I have known each other a long time now. She and I share being homeschool moms of sons and - a shared passion for orphans. She traveled to India with a friend who was adopting not long before we announced we were adopting our girls from Ethiopia. Her family adopted a precious little boy from Ukraine following our return home with our girls. She has been incredibly supportive of us now, as we embark on the journey again.

Aaron - he has the cutest dimples ever!
Julia's story of her adoption, on her blog, was so beautifully told. Julia has a real gift of writing from her heart. A true calling slowly grew throughout her adoption process. Aaron, her son, had a physical special need (arthrogryposis) and in his country, if you are not adopted by age 4 and have a need that is obvious like his, you are then sent on to an institution. There you will live out your days with severely mentally handicapped men (in his case), with no toys, no stimulation, no love, and no hope of ever being adopted. 

Julia's family was the first to adopt a child out of Aaron's institute and it was an unbelievable story of their perseverance and of God's faithfulness to Aaron and to her family for rescuing him from a future that was not a future. Her little boy is home now and is a delight and an amazing young boy. Praise God.

But Julia was forever changed by what she saw and what she knows goes on behind the gates of institutions like Aaron's. She has a passion like you have never seen, to advocate for the special needs children around the world who face futures of institutions, boring days without stimulation/touch/educaiton, no visitors, no family coming for them to care and love on them, and no one to share with them about the love of Christ.


Julia has become an amazing advocate and encourager to families seeking to answer God's call to care for the orphan. She has kept up her blog which has a huge following now and regularly fundraises for families or for the adoption accounts of children on Reeces Rainbow (an amazing ministry that promotes Downs Syndrome adoption and other special needs by keeping adoption accounts for waiting children to defray some of the huge costs for the families that step forward to adopt). Hundreds of Reeces Rainbow children will be celebrating Christmas this year in their own home with their own family because of the work of the Reeces Rainbow group - of which Julia has become one of the loudest voices!


Today on Julia's blog, she has announced a wonderful giveaway she is running to assist in increasing the adoption funds of 5 special children in particular - but also, of all the little ones listed with the Reeces Rainbow ministry. There are so many precious children who long for a mommy and daddy, siblings, family, tradition, their own bed, their own teddy bear to hug at night, for Christmas mornings, cousins, grandparents, storytimes, and learning to read (the list could go on and on - all the many things we, who have always had family, take for granted). By adding to their accounts, families who are being called to these children get a little bit of a break in fees. It is a blessing. Our little girl in China had a similar account through another organization and for that we were incredibly grateful.

So please, hop over to Julia's blog and read about her huge giveaway, the gifts you can win by participating, and the children she is trying to save. She will have you link over to Reeces Rainbow's angel tree where you can choose children to give to. You don't have to give a lot...it can be very little. One year (and this was also Julia's suggestion), we gave each of our kids a 5 dollar bill. We told them to choose a child on the angel tree and we would mail off their donation to the child of their choice. My kids had not even seen kids with some of the needs pictured. It was a great thing for them to take a minute to ponder what life must be like to have a special need and no mommy. Pretty powerful...

Here is Julia's blog:  http://covenantbuilders.blogspot.com/2012/12/angel-tree-gone-wild.html

Here is Reeces Rainbow:  http://static.reecesrainbow.org/angeltree2012/

All donations to Reeces Rainbow are tax deductible. If you have time, go back to read about Julia's adoption story and her descriptions of what she saw. It is painful at times to see and read - but might serve to give you an idea of something you could do to help. God bless!
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